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Let's Talk: Conversations with The Arc of NJ Family Institute

Podcast by The Arc of New Jersey Family Institute focusing on issues and concerns of families caring for a child or adult with intellectual and developmental disabilities
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Let's Talk: Conversations with The Arc of NJ Family Institute
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Now displaying: 2022

The Arc of NJ Family Institute talks with family members of children and adults with intellectual and developmental disabilities, professionals in the field and self-advocates to gain their perspective on a variety of topics.

Apr 21, 2022

This episode features a conversation about Down Syndrome with Dr. Melissa Burgos, President of the Down Syndrome Association of Central New Jersey.

Apr 15, 2022
This episode features a conversation about Prader-Willi Syndrome (PWS) and the different resources available for families who have a child with PWS. We were joined by Paige Rivard, CEO of the Prader-Willi Syndrome Association of the United States (PWSA-USA), and Dorothea Lantz, PWSA-USA's Community Engagement Specialist.
Apr 6, 2022

This episode features a conversation with Dr. Suzanne Buchanan, Executive Director of Autism New Jersey.

Jan 7, 2022

This episode features a conversation with Charlotte and Sam Regen. Charlotte and Sam are a mother and son who have been active members of the New Jersey Center for Tourette Syndrome for the past 10 years. Charlotte and Sam are both advocates for people with TS, and raise awareness through public speaking and community outreach events. Sam also received the Youth Advocate of the Year award in 2021.

Jan 7, 2022

This episode features a conversation with Gerard and Judy Saydah, board members of the New Jersey Rett Syndrome Association and members of the advisory board of the Program for Research and Support for Rett Syndrome at Monmouth University.

Jan 7, 2022

This episode features a conversation with Cara Capela, Leader of the New Jersey Chapter of the National Fragile X Foundation.

Jan 7, 2022

This episode features a conversation with Steve Pasterick, a physical therapist from Pillar Care Continuum(formerly CPNJ) with over 20 years of experience at Pillar Elementary School.

Jan 7, 2022

This episode features a conversation with Lori Shery, President and Founder of the Asperger/Autism Spectrum Education Network (ASPEN). 

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