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Let's Talk: Conversations with The Arc of NJ Family Institute

Podcast by The Arc of New Jersey Family Institute focusing on issues and concerns of families caring for a child or adult with intellectual and developmental disabilities
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Let's Talk: Conversations with The Arc of NJ Family Institute
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The Arc of NJ Family Institute talks with family members of children and adults with intellectual and developmental disabilities, professionals in the field and self-advocates to gain their perspective on a variety of topics.

Apr 21, 2022

This episode features a conversation about Down Syndrome with Dr. Melissa Burgos, President of the Down Syndrome Association of Central New Jersey.

Apr 15, 2022
This episode features a conversation about Prader-Willi Syndrome (PWS) and the different resources available for families who have a child with PWS. We were joined by Paige Rivard, CEO of the Prader-Willi Syndrome Association of the United States (PWSA-USA), and Dorothea Lantz, PWSA-USA's Community Engagement Specialist.
Apr 6, 2022

This episode features a conversation with Dr. Suzanne Buchanan, Executive Director of Autism New Jersey.

Jan 7, 2022

This episode features a conversation with Charlotte and Sam Regen. Charlotte and Sam are a mother and son who have been active members of the New Jersey Center for Tourette Syndrome for the past 10 years. Charlotte and Sam are both advocates for people with TS, and raise awareness through public speaking and community outreach events. Sam also received the Youth Advocate of the Year award in 2021.

Jan 7, 2022

This episode features a conversation with Gerard and Judy Saydah, board members of the New Jersey Rett Syndrome Association and members of the advisory board of the Program for Research and Support for Rett Syndrome at Monmouth University.

Jan 7, 2022

This episode features a conversation with Cara Capela, Leader of the New Jersey Chapter of the National Fragile X Foundation.

Jan 7, 2022

This episode features a conversation with Steve Pasterick, a physical therapist from Pillar Care Continuum(formerly CPNJ) with over 20 years of experience at Pillar Elementary School.

Jan 7, 2022

This episode features a conversation with Lori Shery, President and Founder of the Asperger/Autism Spectrum Education Network (ASPEN). 

Aug 5, 2021

This episode features an interview with Laura Tiefenthaler, Senior Support Coordinator for KISS.

Jun 18, 2021

Joyce Salzberg is the CEO and Co-Founder of Sunny Days Early Childhood Development Services.Ms. Salzberg has over 40 years of experience in the fields of healthcare and developmental disabilities, and she is the longest-serving member of New Jersey's State Interagency Coordinating Council (SICC) and is currently the Acting Chair.

Ms. Salzberg co-founded Sunny Days in 1994 and is jointly responsible for overseeing all operations of the agency. Prior to co-founding Sunny Days, she held a variety of positions in the field of developmental disabilities, including Associate Executive Director of United Cerebral Palsy of New Jersey, in which she oversaw its early intervention programs. Ms. Salzberg has been an SICC member since 1998 and has chaired several sub-committees. In addition, she has served on numerous charitable boards, oversight committees and industry advocacy groups. She holds a BA and MSW from Temple University, where she has been honored as a Distinguished Alumnus and was inducted into the Gallery of Success in 2011. Ms. Salzberg was also inducted into Temple University's Hall of Fame of Women Entrepreneurs in 2013.

May 13, 2021

This episode features an interview with Justine Brancato, Co-Owner and Support Coordinator Supervisor of NJ Support Services.

May 13, 2021

This episode features an interview with Karl Venescar, CEO of Aspire Supports.

Apr 15, 2021

This episode of Sharing Perspectives features an interview with Sarah White, the parent of a child who is currently receiving services through Early Intervention.

Feb 2, 2021

Our newest episode features an interview with Kathleen Hinnigan-Cohen, Chief Operating Officer at The Arc of Essex County. During this interview, we discuss the barriers that prevent families from accessing EI services, and the effect it has on a child's future. Kathy also walks us through some of the major changes in EI's history, including the transition from center-based to in-home services. The New Jersey State Interagency Coordinating Council (SICC) has a unique role in the New Jersey Early Intervention system. Kathy explains how the committee functions, and tells us about her recent appointment to the council.

Jan 11, 2021

Our third episode of Sharing Perspectives features an interview with Janice Rudnick, a Child Development Specialist with The Arc of Bergen and Passaic Counties. In this episode, we discuss the qualifications of practitioners, types of services available for EI, and ways to create a more seamless transition at age 3. The listener has the opportunity to hear about creating Individualized Family Service Plans and the importance of family members, from a practitioner's point of view.

Dec 16, 2020

In our second episode of Sharing Perspectives, we interviewed Eileen Mastricova, Senior Director of Children's Services for The Arc of Union County. Eileen walked us through the steps of an evaluation and talked about how children receiving Early Intervention have responded to services during the COVID-19 pandemic. Eileen discussed the benefits of EI for family structure and siblings and recommended ways to create a smooth transition when a child turns three. With her ten years of experience at The Arc of Union County, Eileen also shared how EI has evolved to where it is today.

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